Asymmetry Tips
(please see disclaimer at the bottom of this page)
Tip #1
Re: x-ray measurements to check for assymetry 
It can also be called Bone Length Study or Teleroentgenogram (probably why they call it a scanogram, too hard to pronounce). When I got to work one of the radiology techs (a mom & friend) looked it up for me. According to the health care system I work for, the manual states it is a CT procedure not a general x-ray. Some of the smaller hospitals may still do it in general x-ray, though.

Tip#2
Your son's leg pain may be due to his growth spurts. Children with BWS do most of their growing it seems when they are younger. Be sure his doctor is watching out for asymmetrical leg growth (one leg growing faster then the other one). Warm towels or soaking in a warm bath may help. If it still hurts then talk to his doctor about ibuprofen.

Tip #3
There is a loose connection between bws and heel cord tightness  (which causes the toe walking). Physical therapy is one the treatments.

Tip #4
I have noticed people talking about how they buy their shoes.  My son is not there yet, but I know that I will be buying different sizes so I did some research. Someone gave me a list of websites for parents of children with special needs and I found the site listed below. They have a seperate listing for footwear and if you click on it, it will take you to a list of stores that sell special footwear including shoes that are different sizes. Family Village Accessibility Shopping Mall
 

Tip #5
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Assymetry Links:
Hemihypertrophy - Collaborative Hypertext of Radiology
Growth Discrepancy Home Page
Hemihypertrophy Online Support and Information Group
Genetic Abnormalities in Beckwith-Wiedemann Syndrome
Epidemiological features of Wilms' tumor
Ask NOAH About: Wilms' tumor
Wilms' tumor - National Cancer Institute
Hemihypertrophy & Hemihyperplasia -- Dr. Greene's House Calls

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Disclaimer: All information on this site, except for that from the doctors and researchers, is given by volunteers and parents. The information given is non-professional advice only and is not meant to replace the medical expertise of your doctor. The creators of this web site do not censor or edit tips submitted and are not responsible for any errors or misinformation. Please consult your physician for more information on how best to treat your child.

this page last modified: Tuesday March 27, 2007