I am so happy I have stumbled across this website, to be able to read more about BWS, from a parent perspective versus textbook, is absolutely reassuring to me. My son was born April 2, 2002. I had a terrible pregnancy starting with rapid weight gain (I ended up gaining over 70lbs., of which 75lbs. came off on the birthing table) but the worst part about the pregnancy was no one was able to tell me the gestational age of the baby. I had numerous ultrasounds done, none of which correlated to another, I was told the kidneys were large, but that he was just going to be a big baby. They ended up inducing me because I had gained so much weight and Logan had already dropped about 7 weeks prior. Well after a day and a half of labour and 3 hrs. of pushing I lodged him into my pelvis. They said if I pushed any more I would shatter my pelvis, so off to emergency C-section. He was pulled out minutes later at a whopping 12.5lbs. and two feet long (already size two shoes). He was so badly bruised and swollen, he could not feed, he lost over the allowable birth weight and ended up staying in the special care nursery for a week. After that we had to monitor all intake, thus no breastfeeding. he was diagnosed with BWS that week. In the first few months after we left the hospital Logan seemed to be doing well he rolled over for the first time at 6 weeks of age could sit on his own at 2 months. July rolled around, and Logan weighed in at 32 lbs. with many many tests having been completed, come to find out he has adult size liver and kidneys, with a tumor the size of a golf ball on one of the kidneys. After many months of chemotherapy, he ended up loosing the kidney. However today (July 21, 2003 at 15 months of age) after all the treatments etc. He is now 39 lbs. and just over 3 ft. tall (size 9 shoes) and just an amazing child, strong and very active. He runs around like nothing has ever been the matter with him, people constantly comment on what a happy child when we are out and about. His cognitive skills and development have been matched to that of a three year old, however his speech is delayed with his enlarged tongue. He has no problem getting his point across however, haha. We will continue with all the scans and tests on a three month schedule till he is 8 years of age, hopefully all will go well. But I have no doubt that all will be well. Things happen for a reason, and children are given to those who are strong enough to take care of them. Please feel free to e-mail me. Adrienne

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this page last modified: 27/03/2007