Trach Care Tips
(please see disclaimer at the bottom of this page)
Tip #1
When my son had his trache, sometimes it seemed like we were suctioning him more than other times.  A lot depended on the weather!  Remember! A lot of  BWS kids produce extra saliva, which could be a lot of the reason why you have to suction quite a bit. As far as night, we had a cool mist hooked directly to his trache to keep his airway moist.

Tip#2
I put a thermovent humidifier on our son's trach at night. This seems to suit him as I generally never have to suction at night. It seems the only time I do have to suction is during the day when he's up and about and playing or when he has a cold. Good luck!

Tip #3
My daughter with another syndrome is trached and she uses a timiter air compressor with a heater to give her warm moist air when she's sleeping and I also have her on that most of the time when she's home during the day. When she's healthy, she needs less suctioning than when she's ill. She usually does not need suctioning when she's sleeping at night, but needs suctioning when she wakes up in the morning and intermittently throughout the day. 

Tip #4
My children both had trachs and I did use a compressor.  I found that it made it easier to suction, but was more often.

Tip #5
We used a humidifier over our son's trach all day long for the first year.  He couldn't handle warm air mist so his was cool mist. It did make him somewhat junkie but made it easier to suction him. He was on Robinul to keep his lung secretions down so part of his junkieness was lung related. If you feel you are having excessive secretions and need to suction it may be because the mist is set to high. As time went on we had to decrease the amount of moisture we used because our son became more able to cough and clear himself, he also produced less secretions. I believe I had to suction him once or twice during the night. During the day when he was moving around it was more often but still only a few times between regular suctioning to keep trach clean. We used a simms connector, sort of a pointy wand type of suction tube. We often used this during the day to remove the junk he had coughed up and cleared by himself. It was great, less stress on him than a suction catheter was. 

Tip #6
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Disclaimer: All information on this site, except for that from the doctors and researchers, is given by volunteers and parents. The information given is non-professional advice only and is not meant to replace the medical expertise of your doctor. The creators of this web site do not censor or edit tips submitted and are not responsible for any errors or misinformation. Please consult your physician for more information on how best to treat your child.

this page last modified: Tuesday March 27, 2007